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Outrun 38, Inc.
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info@outrun38.org

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Statistics


  • About 1,000 new cases of cystic fibrosis are diagnosed each year.
  • More than 70% of patients are diagnosed by age two.
  • Nearly half of the CF patient population is age 18 or older.
  • The median predicted age of survival for people with CF is in the early 40s.

Symptoms of CF Include:

  • Very salty-tasting skin
  • Persistent coughing, at times with phlegm
  • Frequent lung infections
  • Wheezing or shortness of breath
  • Poor growth/weight gain in spite of a good appetite
  • Frequent greasy, bulky stools or difficulty in bowel movements

What Is Cystic Fibrosis?
Cystic Fibrosis is an inherited chronic disease that affects the lungs and digestive system of about 30,000 children and adults in the United States (70,000 worldwide). It is the most common lethal genetic disease in the United States. A defective gene and its protein product cause the body to produce unusually thick, sticky mucus that clogs the lungs and leads to life-threatening lung infections; and obstructs the pancreas and stops natural enzymes from helping the body break down and absorb food.

In the 1950s, few children with cystic fibrosis lived to attend elementary school. Today, advances in research and medical treatmentshave further enhanced and extended life for children and adults with CF. Many people with the disease can now expect to live into their 30s, 40s and beyond.

About us
Outrun 38 is a 501c3 charity organization located in Branford, CT, with members around the world. We promote fitness and healthy living by offering a variety of health based community initiatives throughout the year. Since April 2014,  OutRUN has grown to more than 5800 members who have logged more than 335,000 collective running, biking, swimming, and walking miles. Money raised by Outrun 38 supports adults living with Cystic Fibrosis, a life-threatening genetic disease affecting the lungs and digestive system of more than 70,000 people worldwide.  Strides in CF research mean longer, healthier lives and higher median ages.  Funding for medical treatment for this newly thriving group is significantly limited.  OutRUN 38 will help to ensure high quality treatment and bright futures for the “healthy sick;" support the development of new drugs to fight the disease; improve the quality of life for those with CF; and help OutRUN take one step closer to our ultimate goal of making CF stand for Cure Found.  


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